The European Heart Network will collaborate with 13 partners over the next four years in the new EU-funded research project, AIDAVA (AI-powered Data Curation & Publishing Virtual Assistant).
Integrated, high-quality personal health data is a critical resource to ensure quality and continuity of care for patients, and to enhance the secondary use of this data. To date, however, there is no reliable tool for personal health data to become integrated and reusable across institutions, along the patient pathway at national and EU level. The AIDAVA project seeks to fill this gap.
To reach this ambitious goal, the AIDAVA team will design and develop an AI-powered data curation assistant – called AIDAVA –, develop novel data curation and publishing tools, test and assess the value and acceptance of the AIDAVA prototype for maintaining breast cancer registries and longitudinal health records for CVD patients, and develop a sustainable approach to utilise the AIDAVA across healthcare facilities and systems in three countries. Central to the project is the concept of the FAIR Guiding Principles which requires data to be findable, accessible, interoperable and reusable. This is highly human resource intensive in the case of personal health data. AIDAVA will focus on automating the I and the R part of the FAIRification process.
EHN’s primary role in AIDAVA is to place cardiovascular patients’ needs at the centre of the development of the tool from design to development and implementation. The aim is to facilitate patient access to and empower patients to manage their own health records. EHN will coordinate all cardiovascular patient engagement activities throughout the course of the four years, including the participation of four patient consultants.
The project formally started on 1 September 2022 and kicked off its activities with a first meeting that took place in Maastricht, The Netherlands, on 5 October 2022.
To learn more about AIDAVA, check its website at https://aidava.eu/ and follow project developments via Twitter at @aidava_project.
For further information within EHN, please contact EHN EU Project and Communication Officer, Isabella Cinà at icina[at]ehnheart.org.
*****Project Key FactsFull Name: AIDAVA – AI-powered Data Curation & Publishing Virtual AssistantStart Date: 1st September 2022Duration: 48 monthsBudget: 8,642,212 € – of which 7,720,615 € funded by EUCoordinator: Maastricht University, The NetherlandsWebsite: www.aidava.euTwitter: @aidava_project
Project PartnersMaastricht University, The Netherlandsb!loba, BelgiumEuropean Research and Project Office GmbH, GermanyKU Leuven, BelgiumSirma AI EAD, BulgariaThe European Institute for Innovation through Health Data, BelgiumMedizinische Universitaet Graz, AustriaSihtasutus Pohja-Eesti Regionaalhaigla, EstoniaGnome Design SRL, RomaniaAverbis GmbH, GermanyEuropean Cancer Patient Coalition, BelgiumEuropean Heart Network ASBL, BelgiumMIDATA Cooperative, SwitzerlandDigi.me Limited, United Kingdom