Click here for EHN’s feedback to the Commission’s consultation on its European Health Data Space (EHDS) legislative proposal.
EHN welcomes the EHDS proposal, one of the central building blocks for a strong European Health Union.
We welcome the aim to strengthen patient rights for primary use of electronic health data and the proposed provisions for the needed use of health data for research, innovation, policy-making and regulatory purposes (secondary use) for public interest.
EHN recommendations for the EU and Member States include:
EHN’s feedback paper elaborates further on EHN’s views and recommendations put forward.
EHN will closely monitor and engage in the development of the proposal through the European Parliament and Council of the European Union to ensure that the great potential the use of health data holds is harnessed for good and respects the rights of the people behind the data.