The EU-funded AIDAVA project has concluded after four years of research and development, exploring how clinical data can be made more interoperable, reusable and valuable for patients, healthcare professionals and researchers.
AIDAVA – AI-powered Data Curation and Publishing Virtual Assistant – ran from September 2022 to August 2026, bringing together 14 partners across nine countries. EHN contributed to the project by supporting patient involvement and engagement, helping to ensure that patient perspectives informed different stages of the research and development process.
The project tested a ‘curate once, use many times’ approach, in which clinical data are cleaned, structured and validated upstream to create a reusable patient record. This was tested in four hospitals in Estonia, Austria and the Netherlands, across three languages.
From a single curated record, the project demonstrated the generation of three different outputs without further manual data preparation: a European patient summary, a dataset for a federated breast cancer registry and a cardiovascular risk score for the treating doctor.
The consortium also modelled the potential economic implications of this approach. Across the EU-27, it estimated a five-year cost of approximately €6.6 billion for a conventional request-driven approach, compared with €1.04 billion for upstream curation – a potential reduction of 84%. These are scenario-based estimates rather than observed savings and require validation against real-world national data.
The results also identified areas requiring further development. In particular, automated extraction of medical concepts from free text achieved 72% precision and 73% recall across the three languages tested, meaning that human intervention remains necessary for difficult or ambiguous cases.
As the European Health Data Space moves towards implementation, AIDAVA’s final results highlight the importance of considering not only how health data are made available, but also how they are prepared and curated for effective reuse.
Throughout the project, EHN worked to bring the patient perspective into discussions around health data. This included the EHN and AIDAVA Patient Workshop at the European Parliament in April 2026, which brought together patients, policymakers and researchers to discuss trust, transparency and meaningful patient involvement in the European Health Data Space.
Read the full AIDAVA results and press release
Visit the AIDAVA website